I would absolutely love to have a chat with you Beck . My 11 yr old son went into hospital with what was thought appendicitis...... it is now 8 weeks post op ( appendix was fine ) he is on a feeding now 5 weeks and still in pain even when the feeds start  he only manages a mouth full of food because his pushing so hard after all doctors are telling us it’s all in his head and his lost 90 % muscle mass and over 10 kgs .  Your story really hit home .