I was browsing Facebook at 2am. Kiddo had been awake since midnight, again. He insisted I sleep in his bed with him and since I couldn’t doze off through the sharp kicks into my ribs (shouldn’t that end with pregnancy?) I thought I may as well attempt to connect with the outside world.
As I flicked through the colourful passing snaps of everyone’s day, I came across some of you. You looked so happy, and it warmed my heart, it truly did. In some, you were with people I did not recognise, your life had moved on as had mine. There were families, children, holidays galore. I couldn’t help but feel a pang of jealously; you have a freedom that I do not. Still, I wouldn’t give up my world for anything, not even to cease the karate kicks now targeting my back.
Then I saw it. A different photo. A group of you I knew from so long ago, a sea of elated smiles and joy, all delighted to be in each other’s company. And it brought a tear to my eye. In fact, it brought several. Because only a few years ago I belonged in that photo. I was there, smiling without a care in the world, completely oblivious to the path the universe had planned for me.
I can only imagine what you felt when I stopped replying to your messages — stopped making the effort to see you in person. But when autism entered my world, everything I had ever known changed, and in that hurricane of chaos you were lost. But it was me who lost you, and for that I am sorry. You may or may not have children of your own now, but when you do, they are your everything. Your world. Your priority. Kiddo needs me until he is old enough to flourish and fly. But until that day, my life is consumed by his needs, and I firmly believe that’s the way it should be.
Perhaps you will be patient and one day welcome me back into your life? I can only hope.
As I lie in Kiddo's bed, the night unfolding in front of me suddenly seems endless. I think back over such fond memories of us. Growing up, school, university, holidays… wherever I knew you from. Such bittersweet feelings arise. The memories are beautiful and strong, but that’s what they are — memories.
Top Comments
I think this rings true for most parents with children who've been in hospital long term, or have extra / high needs, and the many procedures, processes, and appointments that come with it.
it's nearly indescribable.
I'm lucky to have clean socks and knickers for myself (out of a laundry basket on the floor, let alone in an actual drawer).
Walking my dog to the local park is a luxury in my day. Sitting to drink a coffee when I have a respite carer is a treat. Watching a show on Netlflix late at night every now and then is special.
Unless you live though the situation directly, it's pretty impossible to relate or fully understand no matter how good the intentions.My sister hears about it all but still can't fully comprehend it.
But we choose to prioritise our family and all our wellbeing first - and we live without regret. My friends had many many years of good times with me. if they are true friends, they will understand it is not personal to them, and that we've needed to step back.
Good friends certainly understand; but their lives go on and time goes by - people don't stand still and wait in stasis. Parents who "step back" often forget that, and are horrified to find they've been left behind in the meantime.