Doctors told Mia Adams’ family to brace themselves for the worst. Since collapsing at home in the north-east England town of Wirral, the 21-year-old’s condition had been critical and it seemed unlikely she’d make it through the night, according to The Mirror.
But as Arrowe Park Hospital staff began preparations to remove her from life support, as her parents and siblings steeled themselves to say goodbye, Mia opened her eyes.
Rather than suffering a brain haemorrhage, as doctors had suspected, the cause of Mia’s collapse was revealed to be massive stroke that left her paralysed from the neck down and unable to speak. Her hearing, her sight and her mind, though, were all functioning as normal.
Mia, who seemed perfectly fit and healthy just hours earlier, was now suffering from a rare neurological condition referred to as ‘locked-in syndrome’. She had essentially become a prisoner in her own body.
The first months after Mia’s stroke were devastating for her and her family. The once “bubbly” woman could only communicate with her parents via eye movements (up for ‘yes’, down for ‘no’), and was often left in tears from frustration at the loss of her independence.
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"Rather than suffering a brain haemorrhage, as doctors had suspected, the cause of Mia’s collapse was revealed to be massive stroke that left her paralysed from the neck down and unable to speak."
A medical writer would have known that a proportion of strokes are due to a brain haemorrhage. Locked-in syndrome also involves a more profound paralysis than being "from the neck down" - it's not like quadriplegia.
Jean-Dominique Bauby's novel "The Diving Bell and the Butterfly" recounts his experience of LIS, for those interested.
Are you a medical writer?
I am a doctor who is frequently frustrated by the amount of misinformation perpetuated by sites like this. Laypeople read articles like this and then take away a lot of misconceptions which can (and often do) negatively impact on their understanding of health issues.
Ok