A story you really should read today.

To mark Red Nose Day today, Sarah, a  Mamamia reader who also has a magnificent blog of her own has written the following beautiful post about her little brother.  Sarah writes….

“I suppose it is the way of human nature. All too often we don’t remember the good, only the bad.
I don’t remember my brother’s arrival into the world. I don’t recall visiting him or my mother in hospital.
I do however remember his death.
Vividly.
I was seven years old. My two other brothers and I were sitting at a large table in the drawing room when we heard Rory cry out. He was only four weeks old. I remember finishing my drawing, and slipping down from the big table to go in and see him. My dad, who must have been home from work that lunchtime, followed me.

I remember him pushing me into the doorway between Rory’s room and my parent’s room as he raced past me to snatch up my tiny brother and place him down on my parent’s waterbed.

I remember cowering in the doorway as he yelled for my mother to call an ambulance. I remember her hysterical screams, his attempts to resuscitate a baby who he knew was dead from his first glance, and my slow dawning realisation that the world I knew was gone.

Between the doorway to Rory’s room and my parent’s room, my sure footing of my place in the universe had been snatched away.

I was lucky in many ways. Though I should add, when I say lucky, it’s a relative term. Because my father was the town doctor, my brother’s tiny body was returned to us after autopsy. They had taken great care of him. Treated him tenderly. I remember a tiny white lifeless body that we cuddled. Shed endless tears over. We sought solace in my mother’s loving arms, not knowing our tears made her milk flow over and over again, for a baby who no longer needed feeding.

The whole town attended his funeral. All desperate to comfort us, to find something useful to say. There was nothing. They forgot to get someone to do the offertory so my family and I, tears streaming, blindly made our way up to the altar, stumbling whilst carrying the bread and wine. Past his tiny, white coffin. Past my sleeping brother who would never wake.

The way we treat bereaved families has changed so much. I often think of the agony my mother endured afterwards. There was no Internet world where she could connect with other babyloss mamas. There wasn’t much in the way of counselling for her or my siblings. Even recently, when a flyer arrived home from my son’s school saying they offered counselling for bereaved families if needed, I suffered a sharp pang of jealousy. I wish I’d been offered some.

Our childhood, that of my brothers and myself changed after that.   I struggled with his loss and the all too early realisation that object permanency was a cruel fallacy.

My parents have been tireless fundraisers for and champions of SIDS awareness. They have supported and cared for other bereaved, bewildered parents who have encountered the same loss. Over the years, I have often wondered if their chosen professions, that of a doctor and a nurse, added to the anguish they felt and still, I am sure, sometimes feel. I guess it’s not something that can be measured, and really it doesn’t make any difference. He is still gone.

I suspect many wonder why I am involved in the baby loss communities when I haven’t lost a child at full term or to SIDS. Maybe it’s because I can offer comfort in a way I simply couldn’t for my mother growing up. But mainly, because my brother’s short life taught me to look outside myself. My brother taught me that there isn’t a quantifiable value to be placed on a life. What has become Rory’s Garden is a small way of honouring him. The man he would have become. I often think of the beauty in the fact that his sibling, Richard who was born after Rory’s died works with me in his garden.

I think my parents like that. Rory didn’t get to grow up. But his memory has flourished.”

Red Nose Day is the major fundraiser for SIDS and Kids and it is held today.  SIDS and Kids is dedicated to saving the lives of babies and children during pregnancy, birth infancy and childhood. According to their website:

Sadly each year over 4,300 babies and children die suddenly and unexpectedly from sudden infant death syndrome, stillbirth, fatal sleeping accidents and accidental death. Over 50% of these deaths still have no known cause. SIDS and Kids works to change all this through the provision of education, bereavement support services and funding vital research into stillbirth, sudden infant death syndrome and safe sleeping practices.

SIDS and Kids relies almost totally on the support of the Community.  You can donate to them here