The 5 things I wish more people understood about losing a child.

Four and half years after the death of my oldest son, I finally went to a grief support group for parents who have lost children. I went to support a friend who recently lost her son.

I’m not sure I would’ve gone except that when I was in her shoes, four years ago, I wish I’d had a friend to go with me. Losing a child is the loneliest, most desolate journey a person can take and the only people who can come close to appreciating it are those who share the experience.

The meeting was a local chapter of The Compassionate Friends, an organisation solely dedicated to providing support for those who have lost children, grandchildren or siblings. The facilitator was a tall gentleman who had lost his 17-year-old son eight years ago. He opened the meeting by saying the dues to belong to the club are more than anyone would ever want to pay. Well, he couldn’t be more correct: no one wants to belong to this group.

The group of incredible survivors included parents whose children had been killed by drunk drivers, murdered, accidental overdose, alcoholism, suicide and freak accidents. The children's ages ranged from 6 to 38 years old. When hearing the stories, I had a visceral reaction to being part of this "club," but was also humbled by the greatness of these mothers and fathers.

Most of what I share in this article came from this meeting, but also from my own experience of having lost a child and being four years into that lifelong journey of healing from deep grief. The following five tips can be your compass to help you navigate how to give support to grieving parents on a journey they never wanted to take.

1. Remember our children.

The loss of children is a pain all bereaved parents share, and it is a degree of suffering that is impossible to grasp without experiencing it first hand. Often, when we know someone else is experiencing grief, our discomfort keeps us from approaching it head on. But we want the world to remember our child or children, no matter how young or old our child was.

If you see something that reminds you of my child, tell me. If you are reminded at the holidays or on his birthday that I am missing my son, please tell me you remember him. And when I speak his name or relive memories relive them with me, don't shrink away. If you never met my son, don't be afraid to ask about him. One of my greatest joys is talking about Brandon.

2. Accept that you can't "fix" us.

An out-of-order death such as child loss breaks a person (especially a parent) in a way that is not fixable or solvable - ever! We will learn to pick up the pieces and move forward, but our lives will never be the same.

Every grieving parent must find a way to continue to live with loss, and it's a solitary journey. We appreciate your support and hope you can be patient with us as we find our way.

Please: don't tell us it's time to get back to life, that's it's been long enough, or that time heals all wounds. We welcome your support and love, and we know sometimes it hard to watch, but our sense of brokenness isn't going to go away. It is something to observe, recognise, accept.

3. Know that there are at least two days a year we need a time out.

We still count birthdays and fantasise what our child would be like if he/she were still living. Birthdays are especially hard for us. Our hearts ache to celebrate our child's arrival into this world, but we are left becoming intensely aware of the hole in our hearts instead. Some parents create rituals or have parties while others prefer solitude. Either way, we are likely going to need time to process the marking of another year without our child.

Then there's the anniversary of the date our child became an angel. This is a remarkable process similar to a parent of a newborn, first counting the days, then months then the one year anniversary, marking the time on the other side of that crevasse in our lives.

No matter how many years go by, the anniversary date of when our child died brings back deeply emotional memories and painful feelings (particularly if there is trauma associated with the child's death). The days leading up to that day can feel like impending doom or make it feel like it's hard to breathe. We may or may not share with you what's happening.

This is where the process of remembrance will help. If you have heard me speak of my child or supported me in remembering him/her, you will be able to put the pieces together and know when these tough days are approaching.

4. Realise that we struggle every day with happiness.

It's an ongoing battle to balance the pain and guilt of outliving your child with the desire to live in a way that honors them and their time on this earth.

I remember going on a family cruise 18 months after Brandon died. On the first day, I stood at the back of the ship and bawled that I wasn't sharing this experience with him. Then I had to steady myself, and recognise that I was also creating memories with my surviving sons, and enjoying the time with them in the present moment.

As bereaved parents, we are constantly balancing, holding grief in one hand and a happy life after loss in the other. You might observe this when you are with us at a wedding, graduation or other milestone celebration. Don't walk away - witness it with us and be part of our process.

5. Accept the fact that our loss might make you uncomfortable.

Our loss is unnatural, out-of-order; it challenges your sense of safety. You may not know what to say or do, and you're afraid you might make us lose it. We've learned all of this as part of what we're learning about grief.

We will never forget our child. And in fact, our loss is always right under the surface of other emotions, even happiness. We would rather lose it because you spoke his/her name and remembered our child, than try and shield ourselves from the pain and live in denial.

Grief is the pendulum swing of love. The stronger and deeper the love the more grief will be created on the other side. Consider it a sacred opportunity to stand shoulder to shoulder with someone who have endured one of life's most frightening events. Rise up with us.

This post originally appeared on MindBodyGreen and was republished here with full permission.