I was 10 years old the first time my dad fell in front of me.
He fell hard. So hard that he had cuts on his hands and knees, with blood running from them.
At the time, dad was my netball coach, and being just as stubborn as me, he refused to stop officiating at netball training to clean his legs.
Instead, he finished all the drills and ignored my own and eight other girl’s scrunched up noses and various exclamations of “ewww” as we looked at all the quickly drying blood on his legs and arms.
But even though he continued the training, dad knew something wasn’t right. At this point in his life, my dad was nimble, he was fit, he was an ex-VFL player, a PE teacher and only 48-years-old…. And he had tripped far too easily.
Fast forward through a series of doctor’s appointments and scary days of waiting and we soon learned that dad had Multiple Sclerosis, or MS.
I could count the things I knew about MS using only one finger, before my dad was diagnosed. Once a year my school read a lot of books to raise money for the MS read-a-thon. This is where my knowledge stopped.
Thirteen years on and of course, I now know a lot more.
I know my dad has Primary Progressive, or “the good kind” of MS, as he jokes.
I know that his condition may slowly deteriorate. I know that one day, out of nowhere, it may level off, or even improve.
And I also know that one day, he could be in a wheelchair.
Top Comments
I was diagnosed with Relapsing Remitting MS 21 years ago at the age of 29. The hardest part is the fact that most times the symptoms are invisible. It makes it hard for people to understand what's going on with you. The Seeing MS video is a great tool for friends and families of MS sufferers.
Thanks for your story Dimity, it's good to hear about MS from someone other than the sufferer.
Sunday I am participating in the MS walk/fun run for the first time with my wonderful husband and some fantastic friends who have supported me through this journey.
Sorry but primary progressive is not the "good kind" of MS, it's in fact the worst. Do you maybe mean he has relapsing remitting MS? As the wife of an MS sufferer, I would just rather read the correct thing. I'm tired and although I've read it, that's all that has stuck with me. I will reread it tomorrow and hope it's been corrected by then.