lifestyle

Imagine feeling invincible in the prime of your life. And then noticing a subtle twitching in your arms...

Scott Sullivan with his family.

 

 

 

Chances are, you’ve never heard of Scott Sullivan.

But yesterday morning, he died.

And I want you to take just one minute today to hear a little about Scott and to care about what happened to him.

Four years ago, Scott was your average, pretty fit 39-year-old. He was a runner. Loved a beer with his mates. Could belt out a Guns’n’Roses tune at karaoke if you asked him. Scott had an 18-year career in Finance. And he was married to the girl of his dreams, Sarah. Together they lived in Coorparoo in Brisbane with their two little kids Charlie and Abbey.

And then one morning, Scott noticed weakness in one of his arms. He’d had trouble turning off his iPhone alarm. Cutting his steak at dinner. That kind of thing. So he went to the doctor and was quickly told (and tests confirmed) he had Motor Neurone Disease.

MND is one of those bastard diseases that have no cause, no cure and no effective treatment. According to the MND website, it’s a group of diseases in which the nerve cells (neurones) controlling the muscles that enable us to move, speak, breathe and swallow undergo degeneration and die.

Once he received the shocking diagnosis, Scott (supported by an amazing community of family, friends and work colleagues) dedicated himself to raising both money and awareness about this disease. In four years, he raised more than $1 million through his MND and ME Foundation.

Anyway, yesterday Scott died.

And I just wanted you to know about him.

As his final act of total generosity, Scott requested to be an organ donor. So yesterday when Scott passed away, four people were given the chance for a new life because of his decision.

While Scott’s wife Sarah tries to deal with her immeasurable loss, here’s what you can do. Watch the video and get to know Scott and MND. Like the MND and ME Facebook page. And if you have a spare $5, donate it here.

Scott Sullivan – you will not be forgotten. The world is a better place because you were here.

[youtube http://www.youtube.com/watch?v=pNjz9gZThH8]

You can visit the Motor Neuron Disease Facebook page here to learn more and make a donation.