By EMMA-LOUISE JOHNSON
A few weeks ago one of my nearest and dearest dropped the C bomb: “I’ve got cancer.”
Before I knew it, my gorgeous girlfriend had relocated her newly established New York lifestyle back to Sydney and had begun chemotherapy. All at the ripe old age of 25.
Even though we both live in separate countries, we visit each other regularly and talk most days. During her last few visits she had mentioned having some pain in her neck and arm.
I didn’t hear much more about this until it had escalated to a point where she wasn’t sleeping properly. She took herself (on gut instinct) to have a scan. The pain she was experiencing was in fact a tumor pressing on a nerve ending. There weren’t any other symptoms.
The journey from “I have a pain in my neck” to “you have cancer”, was short and far from sweet. Before I could blink she had endured her first round of chemo and was gearing up for much more to come. Her daily routine sounded more like that of a pin cushion in a Bangkok tailor rather than of a beautiful, successful, young woman enjoying life overseas.
Working for a cancer-related organisation, I write public education articles on the subject all day long. I can rattle off statistics like; “26,000 people are diagnosed with cancer in Hong Kong every year.” I can tell you that the most common form of cancer in women is breast cancer with approximately 8 people diagnosed every day.
But what I couldn’t tell you before is how it actually feels to have someone you love so much diagnosed with something so cruel and unforgiving. It’s a strange and difficult place to be in, trying to answer questions like ‘why her’ when there is absolutely no rhyme or reason.
It’s tough when the only thing that doesn’t discriminate is actually evil, sneaky and unwelcome. It feels similar to a 500kg weight sitting on your chest, pinning down your arms and legs while you watch a train come screaming towards you. You feel helpless.
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Pity we are so far behind in Oz. My late wife was forced to USA in 2006 for state of the art treatment available at the time in hospitals all over the world. It was too late for her, the cancer was eradicated but her liver failed from too many bouts of chemo. The last couple of yrs were great though as the treatment she had has no side effects and only takes 1 day. My wife was able to really enjoy this time with our kids and me. She saw our sons 1st day of school and had several extra Christmases and birthdays. Since her passing I have campaigned to get Cyberknife to Australia. Unfortunately I had to do this with the massive cancer debt I was left with. The Govt refused to help even though they have a fund, MTOP, for exactly the purpose. I ended up losing everything but continued my quest to get this cancer treatment to OZ. This year I was successful. perth will offer Australias 1st Cyberknife centre, 7 yrs after I began. I was niominated for Australian of the year this year as a result. I have written a book about our journey which includes Oprah, patrick Swayze, Kyle and Jackie O. I am using proceeds to get a 2nd Cyberknife to Melb, who had already approved and funded it, but the new Govt has changed priorities.
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I have so much to say but don't know how to say it.Your friend is a remarkable young lady.x